Aware in Care Campaign
The Parkinson’s Foundation launched the Aware in Care campaign in 2011 to help people with Parkinson’s disease (PD) get the best care possible during a hospital stay. According to a recent study, three out of four people with Parkinson’s do not receive medications on time when staying in the hospital. With more frequent hospital visits and a high sensitivity to the timing and dosing of PD medications, people with Parkinson’s face great risks in the hospital.
To protect, prepare and empower people with Parkinson’s before, during and after a hospital visit, we developed the free Aware in Care kit with tools and information to share with hospital staff during a planned or emergency hospital visit.
Parkinson's Outcomes Project
The Parkinson’s Foundation invests millions of dollars into research to help improve the lives of people with Parkinson’s disease (PD). Our most exciting study is underway now: the Parkinson’s Outcomes Project.
Started in 2009, the Parkinson’s Outcomes Project is the largest-ever clinical study of Parkinson’s disease with 10,000 participants in four countries. Through this groundbreaking initiative, Parkinson’s Foundation’s Centers of Excellence track and monitor their care of people with Parkinson’s over time.
What makes this project truly innovative is that it studies everyone with Parkinson’s, from the newly-diagnosed to people who have lived with Parkinson’s for 20 years or more, providing us with a comprehensive view of the disease and its overall impact on people’s lives.
Our unique study evaluates a wide range of Parkinson’s factors including:
-Most effective Parkinson’s treatments
-Best candidates for each treatment
-Various exercise program benefits
Research has shown that the better we manage Parkinson’s today, the better life will be tomorrow. In addition to finding better treatments for people with Parkinson’s and sharing models of excellent care with health professionals, we are working to ensure that every person with Parkinson’s receives the best possible care, no matter where receive care.
The Edmond J. Safra National Parkinson's Wellness Initiative
Stay fit. Build your care network. Connect, learn and socialize at community events. These are the goals of the Edmond J. Safra National Parkinson's Wellness Initiative.
This new program is a partnership between medical professionals and the Parkinson's community to create a network of support at Jewish Community Centers (JCCs) around the country dedicated to improving the quality of life for people with Parkinson's.
The program is open to all people affected by Parkinson's. You do not have to be Jewish to participate.
JCCs will collaborate with Parkinson's Foundation Centers of Excellence to deliver services that will keep those impacted by Parkinson's – people with the disease as well as their families and friends – active, connected and empowered:
Three Parkinson's-specific fitness classes per week;
A care partner support group; and
Seasonal educational events.
Staffed by nurses, social workers and therapists, the Helpline is here to support People with Parkinson's disease in any possible way, including: Current disease information, Medical issues including symptoms and treatments, Health and social care, Emotional support, and Referrals to health professionals and community resources for local support. Call the Parkinson's Foundation's Helpline 1.800.4PD.INFO (473-4636) for answers to all your questions..